Charity Name | Location | What they do | Website | Contact |
---|---|---|---|---|
Canadian Organisation for Rare Diseases | Canada | CORD is Canada's national network for organizations representing all those with rare disorders. CORD provides a strong common voice to advocate for health policy and a healthcare system that works for those with rare disorders | www.raredisorders.ca | Ph: (416) 969-7464 / 1-877-302-7273 |
EURORDIS | Europe | EURORDIS is a non-governmental patient-driven alliance of patient organisations representing 687 rare disease patient organisations in 63 countries covering over 4000 diseases. | www.eurordis.org | eurordis@eurordis.org Ph: Paris: +33 1 56.53.52.10 Brussels: + 32 2 535 75 26 Barcelona: +34 663 087 935 |
NORD | USA | NORD provides a unified voice inthe USA for those courageous individuals, and the parents and other caregivers seeking to help them, so that they won’t have to fight that battle alone. | www.RareDiseases.org | Contact Page |
SWAN | UK | SWAN UK is an initiative of the charity Genetic Alliance UK offering support and information to families of children with undiagnosed genetic conditions. | www.Undiagnosed.org.uk | Contact Page |