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Professor Anthony Weetman will be on the RareCareUK advisory board

RareCareUK is delighted to annnounce that Professor Anthony Weetman (MD DSc FRCP FMedSci) has agreed to join the RareCareUK advisory board. Professor Weetman is Pro-Vice-Chancellor of Medicine, Dentistry and Health, Chair of the Medical Schools Council, Chair of the UK Health Education Advisory Committee and also a Non-Executive Director on the Board of Sheffield Teaching Hospitals Foundation Trust at The University of Sheffield. Dr Shara Cohen, founder for RareCareUK said “I have known Tony for over 30 years and am very excited to have him on board, for the wealth of experience he will bring to the charity”

Bringing Familial Dysautonomia Specialists Together

RareCareUK sponsors Euroscicon Ltd, have created a Dysautonomia session in its Metabolic Diseases Event. This event, which will take place in London on the 20th -22nd September 2016, will provide a unique opportunity for international Familial Dysautonomia experts  (a disease which affects less than 20 people in the UK) to get together and discuss current research and coordination of care. Confirmed Speakers include Professor Horacio Kaufmann, MD FAAN,  Medicine and Pediatrics. Axelrod Chair for Dysautonomia Research,  New York University School of Medicine, NY, USA Mrs Rosalee Gefen, The Zinman College of Physical Education & Sport Sciences, Wingate Institute, Netaney, Israel Dr Su Laurent, Consultant Paediatrician, The Royal Free Hospital, London, UK Dr Robin Lachmann, National Hospi...

RareCareUK founder meets with Cambridge Professor Timothy Cox

At the end of July Dr Shara Cohen, the founder of RareCareUK met with Professor Timothy Cox to discuss launching RareCareUK Professor Cox has a long-standing research interest in the rare diseases. His laboratory is currently developing gene therapy for serious neurodegenerative disorders, including Tay-Sachs and Sandhoff diseases and plays a major role in researching the causes of, and developing treatments for, Krabbes disease and Gaucher disease. In addition Professor Cox, and his group in Cambridge have well-established links with charities and Government-sponsored bodies, which can help bring laboratory work to patients who need to benefit from the research. Dr Shara Cohen said “We hope that RareCareUK will have a long and rewarding relationship with Professor Cox and thank him ...

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