Yesterday Euroscicon Ltd facilitated a partnership between RareCareUK and Cancer Care Parcel. Rare Care UK is a newly formed initiative to supply care for Rare Diseases when it can’t be found through standard channels. The Charity Chair – Charlene Blake met with staff at Cancer Care Parcel yesterday to set up a collaboration which will enable Rare Care UK to reach its aims much […]
Three volunteers, Saskia Zandstra, Honi Pein and Beatrice Avanzato met in March to redesign the Rare Care UK website. Together, they started to develop the website and added a forum in which people suffering with rare diseases will be able to communicate with each other, providing support and advice. “We expect the forum to be […]
Rare care UK was officially established on the 17th Nov when the first commitee meeting took place in a cafe in Whetsone, London. Founding members present were Dr Shara Cohen – Charity founder and trustee Charlene Blake – Charity chair Sue Harris – Family Liasion Honi Pein – DOE coordinator Apologies from Linda Bryant- charity trustee The […]
