“Being told you or your child has a rare disease is not only devastating from the view that there is an illness, but this devastation is compounded by the knowledge that your care and hope are limited. RareCareUK will provide care for now, hope for future and the ability to play a role in achieving this” – Dr Shara Cohen, Founder of RareCareUK
Read MoreDue to the rarity of each disease, there is a lack of scientific knowledge and reliable information which leaves families affected by these diseases unsure of what to do to get help. Symptoms of rare diseases differ from patient to patient which leads to further confusion. These problems can lead to: No existing effective cures due to […]
Email: General enquiries Admin [@] rarecareuk.org Address: RareCareUK. Highstone House, 165 High Street, Barnet, Herts. EN5 5SU, UK
A disease or disorder is defined as rare… in Europe when it affects fewer than 1 in 2000. in the USA when it affects fewer than 200,000 Americans There are over 6,000 recognised rare diseases in the world and approximately 3.5 million people in the UK and 30 million in Europe are affected. 50% of rare diseases […]
Yesterday Euroscicon Ltd facilitated a partnership between RareCareUK and Cancer Care Parcel. Rare Care UK is a newly formed initiative to supply care for Rare Diseases when it can’t be found through standard channels. The Charity Chair – Charlene Blake met with staff at Cancer Care Parcel yesterday to set up a collaboration which will enable Rare Care UK to reach its aims much […]
