Three volunteers, Saskia Zandstra, Honi Pein and Beatrice Avanzato met in March to redesign the Rare Care UK website. Together, they started to develop the website and added a forum in which people suffering with rare diseases will be able to communicate with each other, providing support and advice.
“We expect the forum to be up and running by July. It should provide a secure area where people can find the guidance and support which they are looking for and possibly help others in the process.” – Beatrice Avanzato, Rare Care UK Volunteer
