General Rare Disease Charities

Charity NameLocationWhat they doWebsiteContact
Canadian Organisation for Rare DiseasesCanadaCORD is Canada's national network for organizations representing all those with rare disorders. CORD provides a strong common voice to advocate for health policy and a healthcare system that works for those with rare disorderswww.raredisorders.ca
Ph: (416) 969-7464 / 1-877-302-7273
EURORDISEuropeEURORDIS is a non-governmental patient-driven alliance of patient organisations representing 687 rare disease patient organisations in 63 countries covering over 4000 diseases.www.eurordis.orgeurordis@eurordis.org
Ph: Paris: +33 1 56.53.52.10
Brussels: + 32 2 535 75 26
Barcelona: +34 663 087 935
NORDUSANORD provides a unified voice inthe USA for those courageous individuals, and the parents and other caregivers seeking to help them, so that they won’t have to fight that battle alone.www.RareDiseases.orgContact Page
SWANUKSWAN UK is an initiative of the charity Genetic Alliance UK offering support and information to families of children with undiagnosed genetic conditions.
www.Undiagnosed.org.ukContact Page

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