Yesterday Euroscicon Ltd facilitated a partnership between RareCareUK and Cancer Care Parcel. Rare Care UK is a newly formed initiative to supply care for Rare Diseases when it can’t be found through standard channels. The Charity Chair – Charlene Blake met with staff at Cancer Care Parcel yesterday to set up a collaboration which will enable Rare Care UK to reach its aims much quicker. Jane Geiger and Karolina Dabrowska from Cancer Care Parcel are working hard with their founder Shara Cohen to officially launch Cancer Care Parcel and pledged to give a large proportion of profit to RareCare UK Dr Shara Cohen from Euroscicon Ltd who initiated this meeting (and is a trustee for RareCareUK and founder of Cancer Care Parcel) said “I am very excited about this new partnership which...
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Three volunteers, Saskia Zandstra, Honi Pein and Beatrice Avanzato met in March to redesign the Rare Care UK website. Together, they started to develop the website and added a forum in which people suffering with rare diseases will be able to communicate with each other, providing support and advice. “We expect the forum to be up and running by July. It should provide a secure area where people can find the guidance and support which they are looking for and possibly help others in the process.” – Beatrice Avanzato, Rare Care UK Volunteer
Rare care UK was officially established on the 17th Nov when the first commitee meeting took place in a cafe in Whetsone, London. Founding members present were Dr Shara Cohen – Charity founder and trustee Charlene Blake – Charity chair Sue Harris – Family Liasion Honi Pein – DOE coordinator Apologies from Linda Bryant- charity trustee The initial emphasis on the meeting was to establish how we would raise funds to acheive all the charities aims
Rare Care UK is delighted to announce that Dr Sarah Lotzof, is joining the Scientific/Medical advisory board of RareCareUK. Dr Lotzof founded Chase Lodge Hospital, the first GP-led private hospital in the UK. She has special interest in Paediatrics The elderly Obstetrics Gynaecology Psychiatry She is a welcome addition to the newly formed scientific/medical advisory board and we aim to use Dr Lotzof’s knowledge of both business and medcine to further the charity’s aims.